Rambling about Ryder: Wow!

Wednesday, February 22, 2012

Wow!

We seem to be having a warmer day today. So when Ryder asked (like he always does) to go outside I decided to give it a go. The snow has been melting and the exposed grass is very soggy and there are puddles and muck everywhere. It wouldn't stop any other two year old, so why would i think it could stop Ryder?!

Man I LOVE this kid!

2 comments:

Jordan and Karter's Pit Crew CaptainFebruary 22, 2012 at 12:36 PM
Dana, this just made my week! I could watch Ryder giggling down the icy hill all day! Jordan watched the videos and said that she would like to tell Ryder "That's good walking!"
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DanaFebruary 22, 2012 at 12:40 PM
Awe! It made my week too!! I am beaming right now. He hasn't really had the chance to use the walker since we got home and I was shocked how well he did. Ryder still talks about Jordan daily!! Miss you guys
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Ryder's Story

Ryder and Wyatt are our identical twin boys that were born 12 weeks premature. They suffered from a "rare" disease called Twin to twin transfusion syndrome (TTTS). TTTS affects 10-15% of identical multiples sharing a single placenta. Basically what happens is there are crossed vessels in the placenta forcing one baby to have way too much blood, nutrients & oxygen and the other not enough. Left untreated this heartbreaking disease has a astonishing mortality rate of 90%. Unfortunately I was not diagnosed until I had already gone into labor at 24 weeks gestation so not much could be done. Thankfully the doctors were able to stop my labor and we all made it to 28 weeks. The boys entered their nicu fight together but sadly on their 24 day of life we had to say our goodbyes to sweet Wyatt. Our hearts broke in a million pieces but somehow we picked up a few and continued our fight for Ryder. Ryder stayed in the nicu for 67 long days and was finally able to come home 2 weeks before their anticipated due date. It was a bittersweet day for many. We were told by every doctor that Ryder was just a "normal" baby and not to worry. I never felt right about this and knew there was something more to come. When he was 11 months old he was diagnosed with Spastic Diplegia Cerebral Palsy. Our hearts broke once again and we were left to wonder what his future would hold. When we started this blog Ryder was 19 months old and still could not sit, crawl or walk unassisted. Since then he has made tremendous leaps but he still has a long way to go. He see's his physio therapist and occupational therapist twice a month and speech pathologist once a month. This is what our government will offer and we don't feel it's enough. He has so much determination and we know given the proper tools and therapy nothing will stop him. With your help we sent Ryder to Ability camp in January 2012 and there are many other treatments and alternative therapies we want to give him the opportunity to try. Thank you for supporting Ryder and following his journey!