I love someone with CP do you?!
Today is world CP Day and my wish for Ryder is that this world HE lives in becomes more accepting of him and those who live with this life long condition. I wish that HIS world will become more accessible and that he wont ever let anything stand in his way. That he meets true loving friends who see past the equipment and love him for the smart, funny and amazing kid that he is!
Love you Ryder, you amaze me everyday with your strength and fight. We are so extremely lucky to have you here with us!
As yesterday was World CP Day I thought it would be a good time to give a little update on Ryder....
Ryder is now on his second year at Stepping Stones! Crazy how fast time has flown by. Just this week he was switched to group therapy full time. They feel Ryder no longer requires the one on one therapy and most of his goals are social related anyhow, so what better way to achieve them?! He loves group with his friends so this was an awesome surprise and treat for him. I no longer have doubts that Ryder is on the spectrum. In larger social settings it is becoming obvious that he struggles. We have always looked at this diagnosis as a blessing in disguise and now more than ever I am feeling very grateful that he got a diagnosis so young. A lot of high functioning kids don't get a diagnosis so early. Diagnosis = Therapy so we are feeling very fortunate that he is getting the help he needs. We have been blessed to have the same awesome worker the entire time who loves Ryder as much as he loves her. They have a great time together!
We are still doing physio every week and we feel like Ryder is finally back to where he was before his last growth spurt. He is gaining his confidence again with his canes and can use his walker for longer duration of time. We have tried out two wheelchairs in the past couple months and have picked his out and are just waiting for the paperwork and funding to go through. We had it for a few weeks and it was SO awesome for him to have that independence while we had the peace of mind knowing he was completely SAFE!
Here it is:
Other than that we are just plugging along waiting for his Surgery date. We were originally told June or July, after those months passed we were told it "Should" happen by the end of the year and today was told they have evaluated a lot of kids recently so they cant be for sure how accurate the last guess will be. So as I am obviously not holding my breath but I am definitely crossing my fingers and sending as many positive thoughts out into this universe that he will get it soon! I feel like this surgery will mark a new chapter in all of our lives.