Rambling about Ryder: Happy New Year!!!!

Sunday, January 1, 2012

Happy New Year!!!!

We arrived safely in Toronto. My flight was switched to a direct flight which I was extremely happy about. Unfortunately we had a four hour wait in the saint John airport but I was cool with that, if it meant less travel. Everything worked out after that. Ryder did good on the flight. This was his first time flying with his own seat and he looked like such a big boy :) Next time I would like to try and bring his car seat, as it was tricky trying to get him to actually sit up in his seat with just the lap belt. My mom's flight arrived 5 minutes before mine and we met right at the baggage claim. Our car rental was the exact car that my mom drives back home which made the unfamiliar drive a little less stressful. Drivers here seem to be a little on the aggressive side but we managed to find our way. We are staying right down town and I can't get over how busy it is here! We went to the mall and you basically could not move, PEOPLE EVERYWHERE!!

Were on our way to Ability Camp! I am REALLY excited now!! We spent new years eve laying low in our hotel room so we could get an early start this morning. Hope everyone had a wonderful New Years!!

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Ryder's Story

Ryder and Wyatt are our identical twin boys that were born 12 weeks premature. They suffered from a "rare" disease called Twin to twin transfusion syndrome (TTTS). TTTS affects 10-15% of identical multiples sharing a single placenta. Basically what happens is there are crossed vessels in the placenta forcing one baby to have way too much blood, nutrients & oxygen and the other not enough. Left untreated this heartbreaking disease has a astonishing mortality rate of 90%. Unfortunately I was not diagnosed until I had already gone into labor at 24 weeks gestation so not much could be done. Thankfully the doctors were able to stop my labor and we all made it to 28 weeks. The boys entered their nicu fight together but sadly on their 24 day of life we had to say our goodbyes to sweet Wyatt. Our hearts broke in a million pieces but somehow we picked up a few and continued our fight for Ryder. Ryder stayed in the nicu for 67 long days and was finally able to come home 2 weeks before their anticipated due date. It was a bittersweet day for many. We were told by every doctor that Ryder was just a "normal" baby and not to worry. I never felt right about this and knew there was something more to come. When he was 11 months old he was diagnosed with Spastic Diplegia Cerebral Palsy. Our hearts broke once again and we were left to wonder what his future would hold. When we started this blog Ryder was 19 months old and still could not sit, crawl or walk unassisted. Since then he has made tremendous leaps but he still has a long way to go. He see's his physio therapist and occupational therapist twice a month and speech pathologist once a month. This is what our government will offer and we don't feel it's enough. He has so much determination and we know given the proper tools and therapy nothing will stop him. With your help we sent Ryder to Ability camp in January 2012 and there are many other treatments and alternative therapies we want to give him the opportunity to try. Thank you for supporting Ryder and following his journey!