Rambling about Ryder: We are 1/4 of the way there! :)

Wednesday, July 27, 2011

We are 1/4 of the way there! :)

Sorry it's been so long since my last post, I really wanted to keep this blog as positive as possible. But... Lately I feel like everything has been such a challenge. Ryder is doing AMAZING as always but everything out there in place to help kids like him, are unavailable at the time. I am getting so worn out with empty promises on the equipment Ryder so badly needs. We are also being directed in a million different directions to seek help and resources, when in the end we are only being put on huge waiting lists. There is so much more I could go on about but I will just leave it at that. I am sure you would much rather hear about this amazing kid!

Ryder has learnt some new tricks in the past couple weeks. He has started sitting (while occupied) for longer periods of time, he has been pulling himself to standing on anything he can and the other day he was able to go from all fours up into high kneeling!! That was a huge moment as before that he wouldn't even go on all fours!! I feel like he is "able" to crawl but he just know's what works and that's pulling himself army style.

We are doing awesome with our online donations! We really can't thank you all enough!! We have raised a total of $2,950! Our goal is $12,000 so were 1/4 of the way there!! Thank you, Thank you THANK YOU!!!

No comments:

Post a Comment

Ryder's Story

Ryder and Wyatt are our identical twin boys that were born 12 weeks premature. They suffered from a "rare" disease called Twin to twin transfusion syndrome (TTTS). TTTS affects 10-15% of identical multiples sharing a single placenta. Basically what happens is there are crossed vessels in the placenta forcing one baby to have way too much blood, nutrients & oxygen and the other not enough. Left untreated this heartbreaking disease has a astonishing mortality rate of 90%. Unfortunately I was not diagnosed until I had already gone into labor at 24 weeks gestation so not much could be done. Thankfully the doctors were able to stop my labor and we all made it to 28 weeks. The boys entered their nicu fight together but sadly on their 24 day of life we had to say our goodbyes to sweet Wyatt. Our hearts broke in a million pieces but somehow we picked up a few and continued our fight for Ryder. Ryder stayed in the nicu for 67 long days and was finally able to come home 2 weeks before their anticipated due date. It was a bittersweet day for many. We were told by every doctor that Ryder was just a "normal" baby and not to worry. I never felt right about this and knew there was something more to come. When he was 11 months old he was diagnosed with Spastic Diplegia Cerebral Palsy. Our hearts broke once again and we were left to wonder what his future would hold. When we started this blog Ryder was 19 months old and still could not sit, crawl or walk unassisted. Since then he has made tremendous leaps but he still has a long way to go. He see's his physio therapist and occupational therapist twice a month and speech pathologist once a month. This is what our government will offer and we don't feel it's enough. He has so much determination and we know given the proper tools and therapy nothing will stop him. With your help we sent Ryder to Ability camp in January 2012 and there are many other treatments and alternative therapies we want to give him the opportunity to try. Thank you for supporting Ryder and following his journey!