Rambling about Ryder: Feeling the Love :)

Saturday, July 2, 2011

Feeling the Love :)

We have received some more than generous donations in the last 24 hours and I really can't find the right words to say or describe this feeling. I keep saying overwhelmed but usually that feeling with me is not such a good thing. This is me being overwhelmed in the best possible way! :) Some of the donations are coming from old friends, we haven't spoke to in years and some from complete strangers!! I thank you all from the bottom of my heart. We have received just over $500 in online donations and messages of more waiting for our bank account to be opened. Wow I am really just left speechless at the moment and I know this good karma will come back to you all, in your time of need. I am sure Ryder can say it better than me, so here it goes........

It was a nice day in Saint John today. I was really contemplating taking Mr.Ancy-Pants out to the Qplex for a swim but thought I should save it for a day Daddy can come too. Ryder and I still managed to have a fun afternoon :) I filled up his pool (with warm water only because I couldn't find the hose) and we relaxed and played in the yard. He even managed to stay upright leaned against the pool for a while :)

He LOVED trying to splash Mommy!!

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Ryder's Story

Ryder and Wyatt are our identical twin boys that were born 12 weeks premature. They suffered from a "rare" disease called Twin to twin transfusion syndrome (TTTS). TTTS affects 10-15% of identical multiples sharing a single placenta. Basically what happens is there are crossed vessels in the placenta forcing one baby to have way too much blood, nutrients & oxygen and the other not enough. Left untreated this heartbreaking disease has a astonishing mortality rate of 90%. Unfortunately I was not diagnosed until I had already gone into labor at 24 weeks gestation so not much could be done. Thankfully the doctors were able to stop my labor and we all made it to 28 weeks. The boys entered their nicu fight together but sadly on their 24 day of life we had to say our goodbyes to sweet Wyatt. Our hearts broke in a million pieces but somehow we picked up a few and continued our fight for Ryder. Ryder stayed in the nicu for 67 long days and was finally able to come home 2 weeks before their anticipated due date. It was a bittersweet day for many. We were told by every doctor that Ryder was just a "normal" baby and not to worry. I never felt right about this and knew there was something more to come. When he was 11 months old he was diagnosed with Spastic Diplegia Cerebral Palsy. Our hearts broke once again and we were left to wonder what his future would hold. When we started this blog Ryder was 19 months old and still could not sit, crawl or walk unassisted. Since then he has made tremendous leaps but he still has a long way to go. He see's his physio therapist and occupational therapist twice a month and speech pathologist once a month. This is what our government will offer and we don't feel it's enough. He has so much determination and we know given the proper tools and therapy nothing will stop him. With your help we sent Ryder to Ability camp in January 2012 and there are many other treatments and alternative therapies we want to give him the opportunity to try. Thank you for supporting Ryder and following his journey!