Rambling about Ryder: Today we count our blessings

Friday, July 1, 2011

Today we count our blessings

We are feeling so loved and supported by our friends and family, now more than ever. I found out about the Ability Camp on Wednesday and just two days later we have so many people saying they want to help get Ryder there. We are so grateful and blessed to have you all in our lives. Through all the heartache and pain we have endured in the last two years it's moments like this that remind us it's all going to be okay.

There is a Paypal "Donate" button on the side bar and we will be going to the bank on Monday to set up an account in Ryder's name. We thank you from the bottom of our hearts. I will continue to blog about Ryder's journey and as you follow along know that you had a part in where he is today.

yfrhtrjhttjg- Love Ryder

Happy Canada Day!

1 comment:

AnonymousJuly 1, 2011 at 9:19 PM
As a proud Mother and Grandmother, I would like to thank everyone for your support. Dana & Tyler face each one of life's challenges with more strength than I could ever imagine having. Ryder deserves the very best, just like all of our Children and Grandchildren. I promise that this beautiful little boy will amaze you, just has Ryder continues to amaze us. Thank you from the bottom of my heart. xoxo
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Ryder's Story

Ryder and Wyatt are our identical twin boys that were born 12 weeks premature. They suffered from a "rare" disease called Twin to twin transfusion syndrome (TTTS). TTTS affects 10-15% of identical multiples sharing a single placenta. Basically what happens is there are crossed vessels in the placenta forcing one baby to have way too much blood, nutrients & oxygen and the other not enough. Left untreated this heartbreaking disease has a astonishing mortality rate of 90%. Unfortunately I was not diagnosed until I had already gone into labor at 24 weeks gestation so not much could be done. Thankfully the doctors were able to stop my labor and we all made it to 28 weeks. The boys entered their nicu fight together but sadly on their 24 day of life we had to say our goodbyes to sweet Wyatt. Our hearts broke in a million pieces but somehow we picked up a few and continued our fight for Ryder. Ryder stayed in the nicu for 67 long days and was finally able to come home 2 weeks before their anticipated due date. It was a bittersweet day for many. We were told by every doctor that Ryder was just a "normal" baby and not to worry. I never felt right about this and knew there was something more to come. When he was 11 months old he was diagnosed with Spastic Diplegia Cerebral Palsy. Our hearts broke once again and we were left to wonder what his future would hold. When we started this blog Ryder was 19 months old and still could not sit, crawl or walk unassisted. Since then he has made tremendous leaps but he still has a long way to go. He see's his physio therapist and occupational therapist twice a month and speech pathologist once a month. This is what our government will offer and we don't feel it's enough. He has so much determination and we know given the proper tools and therapy nothing will stop him. With your help we sent Ryder to Ability camp in January 2012 and there are many other treatments and alternative therapies we want to give him the opportunity to try. Thank you for supporting Ryder and following his journey!