Rambling about Ryder: He's a climbing boy!

Friday, November 4, 2011

He's a climbing boy!

We have been so close, for so long but today he did it! After almost a full year of training, Ryder climbed the stairs all by himself!! He didn't just climb one or two, he went for it and did the whole flight! I AM SO PROUD!!!

Look at him go!!

Right now Ryder and I are in BC visiting all my family & friends back home. We arrived Tuesday after a full day of travel. On our first plane ride we sat next to a mom and her 11 week old baby girl. Every time the baby would start to cry Ryder's little lip would pucker and he would cry too. Other than the last bit of screaming x2 it was a good flight and he slept the whole time. He did pretty good on the long flight too. He didn't sleep at all but he watched 6 hours of straight Thomas the train. You would think he would be sick of it after that but as always he's still asking for more. I now have a new appreciation and love for that "Cheeky little engine!" lol

Ryder has adjusted very well to the four hour time difference. He's sleeping in his own big boy bed, (aka mattress on the floor) and seems to be sleeping way better then he does in his crib at home. I end up in bed with him every night but mainly because I fall asleep cuddling him and am too lazy to go back to my own bed. He's also been using a pillow and I don't know why but I think it's the cutest thing ever!! haha!

This trip out, Ryder loves my parents dogs. He calls them Abba and Dog (Abbie and Ben) and chases them around the house. Iv never heard him belly laugh as much as he did the first night playing with them. We have only been here for three days but it already feels like it's going by way too fast. Lots of visiting and special people to see. We leave on the 19th to fly to Alberta to visit my brother, sister-in law, nephews and meet the newest addition to be! Can't wait!! So good to be home :)

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Ryder's Story

Ryder and Wyatt are our identical twin boys that were born 12 weeks premature. They suffered from a "rare" disease called Twin to twin transfusion syndrome (TTTS). TTTS affects 10-15% of identical multiples sharing a single placenta. Basically what happens is there are crossed vessels in the placenta forcing one baby to have way too much blood, nutrients & oxygen and the other not enough. Left untreated this heartbreaking disease has a astonishing mortality rate of 90%. Unfortunately I was not diagnosed until I had already gone into labor at 24 weeks gestation so not much could be done. Thankfully the doctors were able to stop my labor and we all made it to 28 weeks. The boys entered their nicu fight together but sadly on their 24 day of life we had to say our goodbyes to sweet Wyatt. Our hearts broke in a million pieces but somehow we picked up a few and continued our fight for Ryder. Ryder stayed in the nicu for 67 long days and was finally able to come home 2 weeks before their anticipated due date. It was a bittersweet day for many. We were told by every doctor that Ryder was just a "normal" baby and not to worry. I never felt right about this and knew there was something more to come. When he was 11 months old he was diagnosed with Spastic Diplegia Cerebral Palsy. Our hearts broke once again and we were left to wonder what his future would hold. When we started this blog Ryder was 19 months old and still could not sit, crawl or walk unassisted. Since then he has made tremendous leaps but he still has a long way to go. He see's his physio therapist and occupational therapist twice a month and speech pathologist once a month. This is what our government will offer and we don't feel it's enough. He has so much determination and we know given the proper tools and therapy nothing will stop him. With your help we sent Ryder to Ability camp in January 2012 and there are many other treatments and alternative therapies we want to give him the opportunity to try. Thank you for supporting Ryder and following his journey!